The Pitt Hopkins Research Foundation supports research to help find treatment, medicine, and a cure for Pitt Hopkins syndrome.
In 2014, doTERRA Wellness Advocate Maia Ginnelly’s son, Michael, was diagnosed with Pitt Hopkins syndrome—changing both of their lives forever. Pitt Hopkins syndrome is a rare genetic disorder that causes developmental delays, breathing problems, seizures, and more. After her son’s diagnosis, Maia turned to the Pitt Hopkins Research Foundation (PHRF) for information and resources that would allow her to help her son. PHRF strives to find new sources for treatment, medicine, and to eventually find a cure for Pitt Hopkins syndrome.